• Health systems and services are complex and difficult to navigate
• Limited communication between healthcare and disability providers
• Focus on acute care rather than long-term health needs, and community living supports
• Financial models focus on acute care and do not pay for collaboration
• Fragmentation negatively impacts individuals, families, healthcare system, communities, and state
• Families often serve as the “case manager” and navigator with little to no formal education or support
• Individuals with I/DD are at risk for complex health conditions and chronic disease and co-occurring mental illness
• They have low rates of preventative screenings and health promotion
• Integrated care models often do not address the needs of people with I/DD
